Virtual Headache Specialist

Comprehensive Guide to Understanding Intractable Migraine

Imagine a headache so relentless, so persistent, that it feels like a never-ending storm in your head. This isn’t just any headache; this is an intractable migraine. Think of intractable migraine as a relentless electrical storm going on in the brain. While migraines are common, affecting millions, their root causes are multifactorial and not completely understood. And within this realm of enigmatic pain, the intractable migraine stands out as one of the most puzzling of all.

 

What is an Intractable Migraine?

When we say intractable migraine, we’re talking about a migraine headache that’s more than a passing pain. It’s a severe, throbbing sensation that sticks around for at least 72 hours, giving you only brief moments of respite. This type of headache is technically called status migrainosus. But what makes it even more challenging is its resistance to medications that usually offer relief to migraine sufferers. Imagine the usual go-to drugs like NSAIDs, gepants, and triptans just not doing the trick. And if that wasn’t enough, this migraine brings along some uninvited guests: severe nausea, dizziness, brain fog, and even vomiting. With such relentless pain, it’s no wonder many seek urgent care in emergency rooms.

 

What Causes an Intractable Migraine?

Here’s where things get a bit tricky. Despite their best efforts, neurologists are still piecing together the puzzle of why certain individuals experience these persistent, treatment-resistant headaches. It’s like trying to solve a puzzle with missing pieces. Think of intractable migraine as if someone turned on the electrical switch of migraine, but it won’t shut back off. But even though the exact cause remains elusive, there are preventative and acute medications that can offer some relief. It’s like having a torch in a dark room; while it might not illuminate everything, it helps you see better.

 

Diagnosing an Intractable Migraine

If you’ve ever experienced these persistent headaches, you’ll know how crucial it is to get a proper diagnosis. It’s like having a persistent cough; you need to know if it’s just a cold or something more serious. The first step is meeting with a healthcare professional, be it your primary care doctor, a neurologist, or a headache specialist. They’ll start by ruling out other potential causes of chronic headaches. Think of it as a detective eliminating suspects to find the true culprit. Once diagnosed with an intractable migraine, the next step is discussing treatment options tailored to your health profile and symptoms. It’s a journey, and like all journeys, it requires patience, especially since there’s no one-size-fits-all solution.

 

Treatment for Intractable Migraine

When living with an intractable migraine, the quest for relief becomes paramount. It’s like being lost in a maze; you’re constantly looking for the exit. And while the journey might be challenging, there are steps you can take to find your way out.

 

  • Prevention is Key

Just as you’d wear a raincoat to avoid getting wet, taking preventive measures is crucial when dealing with intractable migraines. This involves identifying and steering clear of triggers that could escalate a typical migraine into its intractable counterpart. Common culprits include stress, food additives, barometric weather changes and sudden medication changes or hormonal birth control methods to name just a few. Maintaining a consistent routine is essential, ensuring regular meals, adequate sleep, and gentle exercise. Think of it as setting a rhythm for your body. And don’t forget to chat with your healthcare provider about magnesium and other natural supplements.

 

  • Act Fast During an Attack

When a storm is approaching, you’ll likely seek shelter. Similarly, acting swiftly at the onset of a migraine is crucial. The key is to turn off that electrical circuitry of migraine as fast as possible. The longer the migraine attack goes on, the stronger and more refractory it becomes. Taking abortive medication as soon as symptoms begin can be a game-changer. It’s all about timing. Recognizing early signs or pre-headache symptoms (prodrome symptoms) allows you to intervene before the pain spirals out of control. But, as with any storm, there’s no guarantee that the rain won’t break through. If the pain becomes unbearable, leading you to the emergency room, several treatments are available. From intravenous fluids to combat dehydration to nerve block injections and a range of medications, there’s an arsenal at your disposal. If you end up in the ER or have a headache specialist or neurologist that can bring you in for IV infusion therapy in the office, a headache cocktail can be used to help break up the cycle. DHE (dihydroergotamine) can also be helpful in breaking status migrainosus and is the only migraine specific medicine that can still potentially break the attack once it is in a late stage. Remember, it’s all about finding what works best for you.

 

Finding Balance Amidst Intractable Migraines

The journey through the realm of intractable migraines can seem like an uphill battle. Yet, it’s crucial to recognize that added stress, a known migraine catalyst, can amplify the pain. Think of it as adding fuel to a flame. The strategy lies in embracing self-care, maintaining perseverance, and persistently seeking the right treatment to alleviate the pain with your headache specialist or neurologist.

 

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Last Updated on November 18, 2023 by Dr. Eric Baron

Dr. Eric Baron

Dr. Eric P. Baron is a staff ABPN (American Board of Psychiatry and Neurology) Board Certified Neurologist and a UCNS (United Council for Neurologic Subspecialties) Diplomat Board Certified in Headache Medicine at Cleveland Clinic Neurological Institute, Center for Neurological Restoration – Headache and Chronic Pain Medicine, in Cleveland, Ohio. He completed his Neurology Residency in 2009 at Cleveland Clinic, where he also served as Chief Neurology Resident. He then completed a Headache Medicine Fellowship in 2010, also at Cleveland Clinic, and has remained on as staff. He is also a Clinical Assistant Professor of Neurology at Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. He has been repeatedly recognized as a “Top Doctor” as voted for by his peers in Cleveland Magazine, and has been repeatedly named one of "America's Top Physicians". He is an author of the popular neurology board review book, Comprehensive Review in Clinical Neurology: A Multiple Choice Question Book for the Wards and Boards, 1st and 2nd editions, and has authored many publications across a broad range of migraine and headache related topics. To help patients and health care providers who do not have easy access to a headache specialist referral due to the shortage in the US and globally, he created and manages the Virtual Headache Specialist migraine, headache, and facial pain educational content, blog, and personalized headache and facial pain symptom checker tool. You can follow his neurology, headache, and migraine updates on Twitter @Neuralgroover.